Appendix 114-B Assessment Instruments for Non-Medicaid Home and Community Based Services: Determination of Need – Revised (DON-R)

Georgia State Seal

Georgia Division of Aging Services
Home and Community-Based Services Manual

Chapter:

100

Effective Date:

Section Title:

Determination of Need – Revised (DON-R)

Reviewed or Updated in:

MT 2020-01

Section Number:

Appendix 114-B

Previous Update:

Functional Assessment (ADLs/IADLs)

Introduction

The Determination of Need functional assessment (DON) instrument was originally developed as part of a contract with the Illinois Department of Aging to provide the means for determining eligibility for community-based services. As such, there was a need for the DON to identify those factors that were the best predictors of need for care. Furthermore, there was a need for the instrument to be constructed in a fashion that would permit the state to set funding caps for different levels of impairment, but also allow for adjustment as a care recipient’s needs changed. Beginning in 1987 and concluding in 1989, a group of researchers at the Gerontology Center of the University of Illinois at Chicago worked on developing such an instrument. The process involved in the DON’s development is well documented in a three-volume final report to the Illinois Department on Aging (Paveza et al., 1989; Prohaska et al., 1989; Hagopian et al., 1990) and in two articles (Paveza et al., 1990a; Paveza et al., 1990b).

Since the DON was developed as part of a state contract the instrument resides in the public domain. The instrument described in this manual represents a modification for use by those wishing to solely assess functional impairment in persons with whom they are working, as well as refinements made to the interpretative process as use of this instrument has evolved over time. Nevertheless, since the original DON was developed under a public contract, this modified DON also resides in the public domain.

The State of Georgia began training on the DON during 1995-1996. Use of the DON was implemented for Home and Community Based Services (HCBS) in 1997 and was subsequently implemented for telephone assessment/Gateway in 2000-2001.

The Determination of Need - Revised (DON-R) defines the factors which help determine a person’s level of impairment and the unmet need for assistance in dealing with these impairments. The DON-R allows for independent assessment of both impairment in functioning on basic Activities of Daily Living (ADL) and Instrumental Activities of Daily Living (IADL) and the need for assistance to compensate for these impairments.

The backbone of determining the level of need for care is whether a person can perform activities of daily living. Table 1 presents the list of ADLs included in the DON-R under two categories: BASIC AND INSTRUMENTAL.

DAS does not use the DON-R to determine eligibility for HCBS services; rather its primary purposes are to help prioritize consumers at risk of institutionalization, to develop appropriate service plans to address impairments and unmet needs for care, and to maximize the use of community resources.

<Basic> Activities of Daily Living (ADL) Instrumental Activities of Daily Living (IADL) (IADL)

Eating

Managing Money

Bathing

Telephoning

Grooming

Preparing Meals

Dressing

Laundry

Transferring

Housework

Continence

Outside Home

Routine Health

Special Health

Being Alone

The ADLs refer to those activities and behaviors that are the most fundamental self-care activities to perform and are an indication of whether the person can care for his/her physical needs.

The IADLs are the more complex activities associated with daily life and are the functions that are necessary to maintain one’s environment. Information regarding both ADLs and IADLs are essential to evaluating whether a person can live independently in the community.

Determination of Need – Revised Functional Assessment Instrument

The DON-R is a unique measure of functional assessment in that it differentiates between impairment in functional capacity and the need for care around a particular function. Furthermore, it is an ordinal scale with clearly defined meanings for each level of impairment, each level of unmet need for care and each functional activity. Because of its ordinal nature, the instrument permits quantification of scores so that changes in scores represent actual changes in level of impairment and unmet need for care.

Before discussing the specific definitions that describe the functional activities included in the DON-R and the definitions that specify each of the levels of impairment and unmet need for care, some general comments about the DON-R are provided to assist in the completion of the instrument.

Column Rule

If Column A, "level of impairment”, is scored “0", then Column B, “unmet need” must also be“0".If a client does not have any impairment in a function, it is not possible to have an unmet need.

  1. If Column A is scored greater than “0", then score Column B.

  2. If there is a score greater than “0” in Column A/B, a case comment is needed.

The "Case Comments" space to the right of Column B is used to:

  • Note the reasons for impairment, e.g. if eating level of impairment is scored as a “1” and the person has rheumatoid arthritis, write down that they are having trouble with cutting food and may benefit from adapted utensils. Or, if the person is having trouble swallowing due to advanced dementia, record that information here as well.

  • Note the reasons the person has an unmet need, such as no family nearby or client opposition to caregiver assistance in intimate tasks, such as incontinence, bathing or dressing.

  • Describe the type of service, caregiver support or assistive devices that are currently being used or are in place.

  • Record the primary caregivers’ names or other pertinent information.

Proper notation:

Function Level of Impairment Unmet Need Case Comments

9. Preparing Meals

1

1

Client can open packages and cans; client can use the microwave but has left stove on in past due to mild cognitive impairment; client is able to clean dishes. Family has concern about client possibly leaving stove on.

Improper notation:

Function Level of Impairment Unmet Need Case Comments

9. Preparing Meals

1

1

Client cannot prepare meals like she used to

Determination of Need - Revised Functional Assessment

Function Column A Level of Impairment Column B Unmet Need for Care Case Comments: Identify resources, describe special needs and circumstances that should be considered when developing a care plan

1. Eating

0 1 2 3

0 1 2 3

2. Bathing

0 1 2 3

0 1 2 3

3. Grooming

0 1 2 3

0 1 2 3

4. Dressing

0 1 2 3

0 1 2 3

5. Transferring

0 1 2 3

0 1 2 3

6. Continence

0 1 2 3

0 1 2 3

7. Managing Money

0 1 2 3

0 1 2 3

8. Telephoning

0 1 2 3

0 1 2 3

9. Preparing Meals

0 1 2 3

0 1 2 3

10. Laundry

0 1 2 3

0 1 2 3

11. Housework

0 1 2 3

0 1 2 3

12. Outside Home

0 1 2 3

0 1 2 3

13. Routine Health

0 1 2 3

0 1 2 3

14. Special Health

0 1 2 3

0 1 2 3

15. Being Alone

0 1 2 3

0 1 2 3

Box A: Subtotal Col A, Items 1-6

Box A

Box B

Box B: Subtotal Col B, Items 1-6

Box C: Subtotal Col A, Items 7 - 15

Box C

Box D

Box D: Subtotal Col B, Items 7 - 15

Box E: Subtotal Box A & Box C

Box E

Box F

Box F: Subtotal Box B & Box D

Box G

Box G: Subtotal Box E & Box F

Column A: Level of Impairment

Each of the basic and instrumental activities of daily living (ADL/IADL) must be discussed in terms of level of impairment. Look for the ability to perform the essential components of all 15 activities listed on the following pages. How the assessor mentions functional impairment is not as important as encouraging the client to report how they accomplish the activity, and any difficulties they may encounter. Sample questions could include:

Are you able to do…?
How do you go about…?
How much difficulty do you have in doing…?

The object is to gather sufficient information through interview and observation to determine the most appropriate score for the level of impairment. If the client uses special adaptive equipment, score the client based on the ability to perform activity with that equipment. The DON-R is assessing the client’s ability to perform the essential components of the activity NOT the client’s willingness/desire to do the activity.

Score 0 – The person performs or can perform all essential components of the activity, with or without an assistive device, such that:

  • no significant impairment of function remains; or

  • activity is not required by the client (Routine and Special Health only); or

  • client does not require verbal or physical assistance.

Score 1 – The person performs or can perform most essential components of the activity with or without an assistive device, but some impairment of function remains such that the client requires some verbal or physical assistance in some or all components of the activity.

This includes clients who:

  • experience minor, intermittent fatigue in performing the activity; or

  • take longer than would be required for an unimpaired person to complete the activity; or

  • must perform the activity more often than an unimpaired person; or

  • require some verbal prompting or physical assistance to complete the task.

Score 2 – The person cannot perform most of the essential components of the activity, even with an assistive device, and/or requires a great deal of verbal or physical assistance to accomplish the activity.

This includes clients who:

  • experience frequent fatigue or minor exertion in performing the activity; or

  • take an excessive amount of time to perform the activity; or

  • must perform the activity much more frequently than an unimpaired person; or

  • require frequent verbal prompting to complete the task.

Score 3 – The person cannot perform any essential components of the activity and requires someone else to perform the task, although client may be able to assist in small ways; or requires constant verbal or physical assistance.

Column B: Unmet Need for Care

The purpose of scoring unmet need for care is twofold. The first objective is to assess the consumer’s unmet need for care and the assistance available. The second objective is to determine the impact on the consumer if additional assistance is not provided. In scoring this column, the goal is to obtain information from the client about their perceptions regarding need for care and to use observational skills to determine what the impact might be on the client should care or assistance (or additional assistance) not be provided to the client. The availability of an appropriate caregiver also needs to be assessed. Caregiver availability may be impacted by various factors, including stress/burden, lack of knowledge/skill, etc. The reason for lack of availability should be documented in the comments section. The DONR measures only the availability of the caregiver, not caregiver stress which is assessed via the Bakas Caregiving Outcomes Survey (BCOS).

Questions that might be asked of clients and caregivers are:

Can you tell me if you are getting enough help with…?
Do you think you need more help with …?
Who is helping you with…?

In your own observations, look at the client’s mobility, level of clutter, appearance, unpaid bills, forgetfulness, etc., to assess the level of risk to health or safety if current levels of assistance are not maintained, or if additional assistance is not added.

Score 0 - The client’s need for assistance is met to the extent that the client has no risk to health or safety if additional assistance is not acquired; or the client has no need for assistance; or additional assistance will not benefit the client.

Score 1 - The client’s need for assistance is met most of the time, or there is minimal risk to the health and safety of the client if additional assistance is not acquired.

Score 2 - The client’s need for assistance is not met most of the time; or there is moderate risk to the health and safety of the client if additional assistance is not acquired.

Score 3 - The client’s need for assistance is seldom or never met; or there is severe risk to the health and safety of the client that would require acute medical intervention if additional assistance is not acquired.

If assistance with intimate tasks (bathing, dressing, or continence care) is needed and is available but is inappropriate and/or opposed by the client or caregiver, consider the assistance unavailable.

Essential Components of the Functional Domains

The following definitions will list the essential components of each function for assessing level of impairment. Ask yourself “can the person do all, most, not most or none of the components” to help you score.

Eating

  1. Is the client able to feed himself/herself?

    Assess the client’s ability to feed themselves a meal using routine or adapted table utensils and without frequent spills.

    Essential components of eating are:

    • Cutting food into manageable pieces

    • Getting food or drink to the mouth

    • Chewing

    • Swallowing food or drink

    When a special diet is needed, do NOT consider the preparation of the special diet when scoring this item (see “Preparing Meals” and “Routine Health” items).

  2. Is someone available to assist the client at mealtime?

    If the client scores at least one (1) in level of impairment, evaluate whether someone (including telephone reassurance) is available to assist or motivate the client in eating. Is there someone available:

    • All of the time (score = 0)

    • Most of the time, slight risk to health and safety (score = 1)

    • Not most of the time, higher risk to health and safety (score = 2)

    • Rarely, great risk to health and safety (score = 3)

Bathing

  1. Is the client able to shower or bathe or take sponge baths for the purpose of maintaining adequate hygiene as needed for the client’s circumstances?

    Assess the client’s ability to shower, bathe, or take sponge baths to maintain adequate hygiene and cleanliness. Consider minimum hygiene standards, medical prescription, or health related considerations such as incontinence, skin ulcer, lesions, and frequent profuse nose bleeds. If the consumer can give himself or herself periodic baths, but cannot bathe with the frequency needed because of incontinence, assign a higher score accordingly. If the consumer takes sponge baths and that is adequate, score only on getting in/out of the tub.

    Essential components of bathing are:

    • Getting in and out of the tub or shower

    • Getting adequately set up at sink, if sponge bathing

    • Turning faucets

    • Regulate water temperature

    • Wash fully

    • Dry off fully

  2. Is someone available to assist or supervise the client in bathing?

    If the client scores at least one (1) in level of impairment, evaluate the continued availability of resources to assist in bathing. Is there someone available:

    • All of the time (score = 0)

    • Most of the time, slight risk to health and safety (score = 1)

    • Not most of the time, higher risk to health and safety (score = 2)

    • Rarely, great risk to health and safety (score = 3)

Grooming

  1. Is the client able to take care of his/her personal appearance?

    Assess client’s ability to take care of personal appearance, grooming, and hygiene activities. If a professional has instructed the client to visit a podiatrist for toenail care, consider that an impairment.

    Essential components of grooming are:

    • Shaving (facial and/or other body parts if this is the person’s custom)

    • Nail care, including toenails

    • Hair care (grooming hair, not washing hair)

    • Dental care (brushing teeth or managing dentures)

  2. Is someone available to assist the client in personal grooming tasks?

    If the client scores at least one (1) in level of impairment, evaluate the assistance needed for grooming. Is there someone available:

    • All of the time (score = 0)

    • Most of the time, slight risk to health and safety (score = 1)

    • Not most of the time, higher risk to health and safety (score = 2)

    • Rarely, great risk to health and safety (score = 3)

Dressing

  1. Is the client able to dress and undress as necessary to carry out other activities of daily living?

    Assess the client’s ability to dress and undress as necessary to carry out the client’s activities of daily living in terms of appropriate dress for weather or street attire as needed. If the client chooses night wear for day wear as a preference, do not score an impairment; however, if this is because of dexterity, score as mild impairment. Also include ability to put on prostheses or assistive devices. Consider fine motor coordination for buttons and zippers, and strength for undergarments or heavier items such as a winter coat. Do not include style or color coordination.

    Essential components of dressing are:

    • Putting on clothes

    • Taking clothes off

    • Ability to work buttons, zippers, laces

    • Clothes are appropriate to weather or activity

  2. Is someone available to assist the client in dressing and undressing?

    If the client scores at least one (1) in level of impairment, evaluate whether someone is available to help dressing and/or undressing the client at the times needed by the client. Is there someone available:

    • All of the time (score = 0)

    • Most of the time, slight risk to health and safety (score = 1)

    • Not most of the time, higher risk to health and safety (score = 2)

    • Rarely, great risk to health and safety (score = 3)

Transfer

  1. Is the client able to get into and out of bed or other usual sleeping place?

    Assess the client’s ability to get into and out of bed or other usual sleeping place, including pallet or arm chair. Include the ability to reach assistive devices and appliances necessary to ambulate, and the ability to transfer (from/to) between bed and wheelchair, walker, etc. Include the ability to adjust the bed or place/remove handrails, if applicable and necessary. Do not assess mobility around the home in this domain.

    Essential components of transferring are:

    • Getting in and out of normal sleeping place

    • Get legs over side of bed

    • Sit up; stand up

    • Reach walker or wheelchair, if used

    • Get out of lounger, if that is normal sleeping place

  2. Is someone available to assist or motivate the client to get in and out of bed?

    If the client scores at least one (1) in level of impairment, evaluate the continued availability of resources, (including telephone reassurance and friendly visiting) to assist or motivate the client in getting into and out of bed. Is there someone available:

    • All of the time (score = 0)

    • Most of the time, slight risk to health and safety (score = 1)

    • Not most of the time, higher risk to health and safety (score = 2)

    • Rarely, great risk to health and safety (score = 3)

Continence

  1. Is the client able to take care of bladder/bowel functions without difficulty?

    Assess the client’s ability to take care of bladder/bowel functions by reaching the bathroom or other appropriate facility in a timely manner. Consider the need for reminders. If the consumer has a colostomy that is managed properly, consider this as continent in bowel. Also, account for medical conditions (ex: temporary vs. permanent catheter).

    Essential components of continence are:

    • Recognize the need to go

    • Get to the bathroom on time

    • Get clothing off to level needed

    • Clean up

    • Get clothes back on/up

  2. Is someone available to assist the client in performing bladder/bowel functions?

    If the client scores at least one (1) in level of impairment, evaluate whether someone is available to assist or remind the client as needed in bladder/bowel functions. Is there someone available:

    • All of the time (score = 0)

    • Most of the time, slight risk to health and safety (score = 1)

    • Not most of the time, higher risk to health and safety (score = 2)

    • Rarely, great risk to health and safety (score = 3)

Managing Money

  1. Is the client able to handle money and pay bills?

    Assess the client’s ability to handle money and coins and to pay bills. Include ability to plan, budget, write checks or money orders, exchange currency, and handle paperwork (including applications for benefits). Include the ability to read, write and count sufficiently to perform the activity. Do not increase the score based on insufficient funds.

    Essential components of managing money are:

    • Recognize the difference between paper money and coins

    • Understand what a bill is and how to pay it

    • Write a check

    • Ability to count money

  2. Is someone available to help the client with money management and money transactions?

    If the client scores at least one (1) in level of impairment, evaluate whether an appropriate person is available to plan and budget or make deposits and payments on behalf of the client. Consider automatic deposits, banking by mail, etc. Is there someone available:

    • All of the time (score = 0)

    • Most of the time, slight risk to health and safety (score = 1)

    • Not most of the time, higher risk to health and safety (score = 2)

    • Rarely, great risk to health and safety (score = 3)

Telephoning

  1. Is the client able to use the telephone to communicate essential needs?

    Assess the client’s ability to use a telephone to communicate essential needs. Do not consider the absence of a telephone in the client’s home. The use of an emergency response system (ERS) device should be considered in the “Being Alone” domain.

    Essential components of telephoning are:

    • Picking up phone

    • Dialing

    • Talking

    • Being Understood and understanding the conversation sufficiently enough to explain the conversation to another person

    • Hanging up the phone

  2. Is someone available to assist the client with telephone use?

    If the client scores at least one (1) in level of impairment, evaluate whether someone is available to help the client reach and use the telephone or whether someone is available to use the telephone on behalf of the client. Consider the reliability and the availability of neighbors to accept essential routine calls and to call authorities in an emergency if client does not have a telephone in the home. Is there someone available:

    • All of the time (score = 0)

    • Most of the time, slight risk to health and safety (score = 1)

    • Not most of the time, higher risk to health and safety (score = 2)

    • Rarely, great risk to health and safety (score = 3)

Preparing Meals

  1. Is the client able to prepare hot and/or cold meals that are nutritionally balanced or therapeutic, as necessary, which the client can eat?

    Assess the client’s ability to plan and prepare routine hot and/or cold, nutritionally balanced meals. Do not consider the ability to plan therapeutic or prescribed meals. If a client states he or she cannot “cook like they used to”, he or she does not necessarily have an impairment score. The impairment score only looks at the level of impairment within the essential components. When in doubt, consider the essential components of preparing food in order for a person to remain healthy and safe.

    Essential components of preparing meals are:

    • Opening packages or cans

    • Pouring food into bowl or pot

    • Turning knobs on the stove

    • Using other kitchen appliances

    • Washing and putting away dishes

  2. Is someone available to prepare meals as needed by the client?

    If the client scores at least one (1) in level of impairment, evaluate the continued availability of resources (including restaurants and home-delivered meals) to prepare meals or supervise meal preparation for the client. Consider whether the resources can be called upon to prepare meals in advance for reheating later. Is there someone available:

    • All of the time (score = 0)

    • Most of the time, slight risk to health and safety (score = 1)

    • Not most of the time, higher risk to health and safety (score = 2)

    • Rarely, great risk to health and safety (score = 3)

Laundry

  1. Is the client able to do his/her laundry?

    Assess the client’s ability to do laundry. Include use of coins where needed and use of machines and/or sinks. Only consider ability to access laundry facilities if they are inside the home. The consumer should be able to tell whether or not garments are clean.

    Essential components of laundry are:

    • Getting to machine, if in home

    • Carrying laundry

    • Sorting

    • Getting clothes in and out of washer and dryer

    • Folding

    • Putting away

  2. Is someone available to assist with performing or supervising the laundry needs of the client?

    If the client scores at least one (1) in level of impairment, evaluate the continued availability of laundry assistance, including washing and/or dry cleaning. If public laundries are used, consider the reliability of others to insert coins, transfer loads, etc. Is there someone available:

    • All of the time (score = 0)

    • Most of the time, slight risk to health and safety (score = 1)

    • Not most of the time, higher risk to health and safety (score = 2)

    • Rarely, great risk to health and safety (score = 3)

Housework

  1. Is the client able to do routine housework?

    Assess the client’s ability to do routine housework to maintain basic sanitary, hygienic, and safety conditions in the home. Do NOT include laundry, washing or drying dishes. In most cases, a consumer’s refusal to do housework is not considered an impairment.

    Essential components of housework are:

    • Sweep, dust

    • Clean up spills on counter or floor

    • Clean sinks and toilets

    • Cleaning bathtub

    • Vacuuming

  2. Is someone available to supervise, assist with, or perform routine household tasks for the client as needed to meet minimum health and hygiene standards?

    If the client scores at least a one (1) in level of impairment, evaluate the continued availability of resources, including private pay household assistance and family available to maintain the client’s living space. When the client lives with others, do not assume the others will clean up for the client. This item measures only those needs related to maintaining the client’s living space and does not measure the maintenance needs of living space occupied by others in the same residence. Is there someone available:

    • All of the time (score = 0)

    • Most of the time, slight risk to health and safety (score = 1)

    • Not most of the time, higher risk to health and safety (score = 2)

    • Rarely, great risk to health and safety (score = 3)

    If hoarding is suspected as a contributing factor to a consumer’s performance in this domain, consider the person completely unable to perform housework. Hoarding is a severe psychological condition for which highly specialized and extensive intervention is required. Resources to remediate this issue may be inadequate, unavailable, or inappropriate.

Outside Home

  1. Is the client able to get out of his/her home and to essential places outside the home?

    Assess the client’s ability to get to and from essential places outside the home. Consider ability to negotiate stairs, streets, porches, sidewalks, entrance and exits of residence, vehicle, and destination in all types of weather. Consider the ability to plan and secure appropriate and available transportation and to know locations of home and essential places. Lack of appropriate and available transportation as needed, will increase the score. However, in scoring, do not consider the inability to afford public transportation. Consider whether there are structural or safety issues with home entries and exits, such as faulty stairs or railings, or uneven surfaces. Consider the consumer’s ability to get from one location to another location without becoming confused or lost.

    Essential components of outside home are:

    • Able to negotiate porch, stairs, walkways

    • Able to get to essential places like grocery store, doctor’s office, bank

    • Able to drive, or get in and out of car, or use public transit

  2. Is someone available to assist the client in reaching needed destinations?

    If the client scores at least one (1) in level of impairment, evaluate the continued availability of escort and transportation, or someone to go out on behalf of the client.

    Is there someone available:

    • All of the time (score = 0)

    • Most of the time, slight risk to health and safety (score = 1)

    • Not most of the time, higher risk to health and safety (score = 2)

    • Rarely, great risk to health and safety (score = 3)

Routine Health Care

  1. Is the client able to follow the directions of physicians, nurses or therapists, as needed for routine health care?

    Assess the client’s ability to follow directions from a physician, nurse or therapist, and to manipulate equipment in the performance of routine health care, if needed. Include simple dressings, special diet planning, monitoring of symptoms and vital signs (e.g. blood pressure, pulse, temperature and weight), routine medications, routine posturing and exercise not requiring services or supervision of a physical therapist. Consider the consumer’s ability to understand, recall, and implement the instructions of a health care provider. Score “0” if client has no routine health needs.

    Essential components of routine health care are:

    • Everyday tasks that don’t need close monitoring and supervision by a licensed care professional

    • Ability to follow directions e.g. taking medications, weighing self, exercising

  2. Is someone available to carry out or supervise routine medical directions of the client’s physician or other health care professionals?

    If the client scores at least one (1) in level of impairment, evaluate the continued availability of someone to remind, supervise or assist the client in complying with routine medical directions.

    Is there someone available:

    • All of the time (score = 0)

    • Most of the time, slight risk to health and safety (score = 1)

    • Not most of the time, higher risk to health and safety (score = 2)

    • Rarely, great risk to health and safety (score = 3)

Special Health Care

  1. Is the client able to follow directions of physicians, nurses or therapists as needed for specialized health care?

    Assess the client’s ability to perform or assist in the performance of specialized health care tasks which are prescribed and generally performed by licensed personnel including physicians, nurses, and therapists. Include blood chemistry and urinalysis; complex catheter and ostomy care; complex or non-routine posturing/suctioning; tube feeding; complex dressings and decubitus care; physical, occupational and speech therapy; intravenous care; respiratory therapy; or other prescribed health care provided by a licensed professional. If the consumer has diabetes and requires special foot care, she should be assessed for the ability to cooperate with the professional while the care is being provided. Score "0" for clients who have no specialized health care needs.

    Essential components of special health care are:

    • Tasks usually performed by a licensed health care professional

    • Includes complex dressings as in wound care; physical, occupational, or speech therapy; IV therapy

  2. Is someone available to assist with or provide specialized health care for the client?

    If the client scores at least one (1) in level of impairment, evaluate the continued availability of specially trained resources as necessary to assist with or perform the specialized health care task required by the client.

    Is there someone available:

    • All of the time (score = 0)

    • Most of the time, slight risk to health and safety (score = 1)

    • Not most of the time, higher risk to health and safety (score = 2)

    • Rarely, great risk to health and safety (score = 3)

Being Alone

  1. Can the client be left alone?

    Assess the client’s ability to be left alone and to recognize, avoid, and respond to danger and/or emergencies. Include the client’s ability to evacuate the premises or alert others to the client’s need for assistance, if applicable, and to use appropriate judgment regarding personal health and safety. Also take into account the consumer’s proficiency at making judgments about personal health and safety.

    Essential components of being alone are:

    • Recognizing an emergency

    • Responding to an emergency

    • Able to get out of the home in case of an emergency

    • Recognize and respond to threats to personal health or safety

  2. Is someone available to assist or supervise the client when the client cannot be left alone?

    If the client scores at least one (1) in level of impairment, evaluate the continued availability of someone to assist or supervise the client as needed to avoid danger and respond to emergencies. Consider the availability of “watchful oversight” such as friendly visiting, telephone reassurance, and neighborhood watch programs.

    Is there someone available:

    • All of the time (score = 0)

    • Most of the time, slight risk to health and safety (score = 1)

    • Not most of the time, higher risk to health and safety (score = 2)

    • Rarely, great risk to health and safety (score = 3)

Scoring the DON-R

Scoring the DON-R is done by obtaining a series of totals in boxes A, B, C, D, E, F, and G on the bottom of the DON-R form.

Subtotal of Columns A and B

  1. Add the scores for the first six functional activities (1-6) of Column A, and enter that score in Box A. Then add the scores for the last nine functional activities (7- 15) and enter that score in Box C. Finally add the scores for Box A and Box C and place that total in Box E.

  2. Add the scores for the first six functional activities (1-6) of Column B, and enter that score in Box B. Then add the scores for the last nine functional activities (7- 15) of Column B and enter that score in Box D. Finally add the scores for Box B and Box D and place that total in Box F.

  3. Add the scores from Box E and Box F and enter that total in Box G.

Each of these boxes provides specific information about the client. Box A provides a score that represents total impairment in basic Activities of Daily Living, while Box C provides a score that represents total impairment in Instrumental Activities of Daily Living. Box E provides a summary score that represents total functional impairment.

Box B provides a score that represents the total unmet need for care in basic Activities of Daily Living, while Box D provides information about the total unmet need for care in Instrumental Activities of Daily Living. Box F provides a summary score of unmet need for all Activities of Daily Living.

Box G provides a summary score that represents a total care burden and represents both a combination of total impairment and total unmet need for care.

Interpreting the DON-R

When interpreting the DON-R score, it is important to look at all sub scores along with the total score. Totals in boxes A, B, C, and D enable you to delve into the data to more accurately assess a consumer’s situation. This also enables you to assess in more detail what the consumer’s needs are based on the individual sub score and to develop appropriate service plans to address impairments and unmet needs.

For example, a score of 4 in Total Level of Impairment for Activities of Daily Living would indicate that the consumer has a low level of impairment. On the other hand, a score of 19 in total Unmet Need for Care in Instrumental Activities of Daily Living could indicate that a family member or caregiver is not present, and the consumer could benefit from assistance in the IADLs.

Consider the following two DON-Rs. Both have the same total score but are interpreted differently because they have different sub scores.

DON-R Client Example A has a total level of impairment score of 4 in ADLs and a total level of impairment score of 11in IADLs and a total overall level of impairment of 15. In terms of unmet need, this client has an unmet need for care score of 17 in IADLs. This could indicate that the client has the ability to perform some basic functions but needs some assistance with higher level functions as indicated.

In DON-R Example B, the client has a total level of impairment score of 11 in ADLs and a total level of impairment score of 14 in IADLs. In comparison, this client has an unmet need for care score of 10 for ADLs but an unmet need for care score of 5 for IADLs. This could indicate that there is a caregiver assisting with IADL tasks, but the client needs assistance with ADL functions.

114 b client example a
114 b client example b

Standardized Score Interpretation

Another method that is used to interpret the DON-R is the use of standardized scores. Standardized scores can be generated based on the raw totals for ADLs and IADLs for both Level of Impairment and Unmet Need for Care (Boxes A, B, C, and D).

To obtain a standardized score for each of these areas, divide the raw score in each of box by the number of domains added in that total. For example, six domains are added to total the raw score of Level of Impairment in Activities for Daily Living in Box A. Divide the number in Box A by 6 to reach the standardized score.

Similarly, you can arrive at standardized scores for Level of Impairment and Unmet Need for Care, as well as overall, by applying the same calculations to each raw score.

Interpretations can be made from each standardized score. Standardized scores in the boxes will be between 0 and 3, and those numbers are ordinal, meaning that they have a scaled relationship to one another; just as the scores you assigned for each domain. Scores of 0 to 3 can be interpreted as follows:

0

No Functional Impairment or no Unmet Need for Care

0 – 1.0

Mild Functional Impairment or mild Unmet Need for Care

1.0 – 1.5

Mild to moderate Functional Impairment or mild to moderate Unmet Need for Care

1.5 – 2.0

Moderate Functional Impairment or moderate Unmet Need for Care

2.0 – 2.5

Moderate to severe Functional Impairment or moderate to severe Unmet Need for Care

2.5 – 3.0

Severe Functional Impairment or severe Unmet Need for Care

Conclusions based on standardized scores for each area and overall can help shape a care plan. But first you must consider the meaning of each area individually.

For example, if the total in Box A is 1.7, this would be interpreted to mean that the consumer has mild to moderate impairment in Activities of Daily Living. If the total in Box C is 2.2, this would be interpreted to mean that the consumer has a moderate to severe impairment in Instrumental Activities of Daily Living.

The difference between those two totals indicates that the consumer is having considerable difficulties with IADLs, but not having as much trouble with the basic ADLs. This may lead you to conclusions about how much the consumer’s abilities have deteriorated, but it will also give you an understanding of what he or she is still able to handle on his or her own. Likewise, standardized scores in Box D and Box G will indicate in which areas the consumer may or may not have unmet care needs.

Essential Components

Function Level of Impairment Unmet Need for Care Essential Components

1. Eating

0 1 2 3

0 1 2 3

  • Cutting food into manageable pieces

  • Getting the food to your mouth

  • Chewing

  • Swallowing

  • Getting a drink to your mouth and swallowing

2. Bathing

0 1 2 3

0 1 2 3

  • Getting in and out of tub or to sink

  • Turning faucets

  • Regulating water temperature

  • Washing entire body

  • Drying entire body

3. Grooming

0 1 2 3

0 1 2 3

  • Fixing hair

  • Shaving

  • Fingernail and toenail care

  • Brushing teeth or dentures

4. Dressing

0 1 2 3

0 1 2 3

  • Getting arms and legs into clothing

  • Getting arms and legs out of clothing

  • Buttons, zippers, laces

  • Clothing is appropriate to social situation

  • Clothing is appropriate to weather

5. Transferring

0 1 2 3

0 1 2 3

  • Getting in and out of the normal sleeping place

  • Get legs over bed

  • Sit up; stand up

  • Get out of lounger if that is normal sleeping place

6. Continence

0 1 2 3

0 1 2 3

  • Recognize need to go

  • Get to the bathroom on time

  • Get clothing off to level needed

  • Clean up

  • Get clothes back on/up

7. Managing Money

0 1 2 3

0 1 2 3

  • Recognize the difference between paper money and coins

  • Understand what a bill is and how to pay it

  • Write a check

  • Ability to count money

8. Telephoning

0 1 2 3

0 1 2 3

  • Picking up phone

  • Dialing

  • Talking

  • Being understood

  • Hanging up the phone

9. Preparing Meals

0 1 2 3

0 1 2 3

  • Opening up packages or cans

  • Pouring food into bowl or pot

  • Turning knobs on stove

  • Using other kitchen appliances

  • Washing and putting away dishes

10. Laundry

0 1 2 3

0 1 2 3

  • Carrying laundry to machine

  • Sorting

  • Getting clothes in and out of washer and dryer

  • Folding

  • Putting away

11. Housework

0 1 2 3

0 1 2 3

  • Sweeping or vacuuming

  • Dusting

  • Cleaning up spills on counter or floor

  • Cleaning sinks and toilets

  • Cleaning bathtub

12. Outside Home

0 1 2 3

0 1 2 3

  • Negotiating porch, stairs, walkways

  • Getting to and navigating essential places like grocery store, doctor’s office, bank

  • Able to drive or get in and out of car, or use public transportation

  • Plan trip

13. Routine Health Care

0 1 2 3

0 1 2 3

  • Completing everyday tasks that don’t need close monitoring and supervision by a licensed care professional

  • Ability to follow directions (taking medications, weighing self, exercising, special diet planning)

14. Special Health Care

0 1 2 3

0 1 2 3

  • Following directions required or performed by a licensed health care professional

  • Performing complex dressings (wound care, physical therapy, occupational therapy, speech therapy, IV therapy, tube feeding, intravenous care)

15. Being Alone

0 1 2 3

0 1 2 3

  • Recognizing an emergency

  • Responding to an emergency

  • Able to get out of the home in case of an emergency

  • Recognizing and responding to threats to personal health or safety

DON-R with Dementia Triggers

Function Level of Impairment Unmet Need for Care Indicators of Possible Cognitive Impairment

1. Eating

0 1 2 3

0 1 2 3

unexplained weight loss, failure to thrive, or vague symptoms (weak, dizzy); difficulty with swallowing

2. Bathing

0 1 2 3

0 1 2 3

poor personal hygiene observed compared to previous

3. Grooming

0 1 2 3

0 1 2 3

inattentive to appearance, unkempt, compared to previous

4. Dressing

0 1 2 3

0 1 2 3

inappropriate dress for climate, weather conditions, or occasion

5. Transferring

0 1 2 3

0 1 2 3

6. Continence

0 1 2 3

0 1 2 3

7. Managing Money

0 1 2 3

0 1 2 3

can no longer write checks, pay bills, balance a checkbook, count money/make change;

8. Telephoning

0 1 2 3

0 1 2 3

can no longer recognize/dial numbers properly; has difficulty with verbal expression, following conversations.

9. Preparing Meals

0 1 2 3

0 1 2 3

can no longer operate stove; cannot heat water; fails to turn surface units/oven off; meal preparation tasks are too complex.

10. Laundry

0 1 2 3

0 1 2 3

can no longer operate washer/dryer

11. Housework

0 1 2 3

0 1 2 3

no longer has usual initiative for basic household chores/upkeep; has trouble organizing objects around the house compared to previous

12. Outside Home

0 1 2 3

0 1 2 3

  • fails to keep scheduled appointments/comes at wrong time/wrong day

  • can no longer shop alone for clothing, household or groceries; stays in own room within home

  • can no longer drive or use transportation alone; impaired sense of direction; gets lost in formerly familiar areas.

13. Routine Health

0 1 2 3

0 1 2 3

repeatedly, and apparently unintentionally, fails to follow instructions for Rx dosages, other healthcare tasks; does not appear to comprehend instructions; cannot learn/retain ability to do new tasks.

14. Special Health

0 1 2 3

0 1 2 3

repeatedly and apparently unintentionally fails to follow instructions for healthcare tasks; does not appear to comprehend instructions; cannot learn/retain ability to do new tasks.

15. Being Alone

0 1 2 3

0 1 2 3

could not identify and respond appropriately to an emergency; seems disoriented. Ability to reason is impaired.

References

Hagopian M, Paveza GJ, Prohaska T, Cohen D: Determination of Need - Revision Final Report, Volume III. Chicago, Illinois: University of Illinois at Chicago, 1990.

Paveza GJ, Cohen D, Hagopian M, Prohaska T, Blaser CJ, Brauner D: A Brief Assessment Tool for Determining Eligibility and Need for Community Based Long Term Care Services. Behavior, Health and Aging 1:121-132, 1990a.

Paveza GJ, Cohen D, Blaser CJ, Hagopian M: A Brief Form of the Mini-Mental State Examination for Use in Community Settings. Behavior, Health and Aging 1:133-139, 1990b.

Paveza GJ, Prohaska T, Hagopian M, Cohen D: Determination of Need - Revision: Final Report, Volume I. Chicago, Illinois: University of Illinois at Chicago, 1989.

Prohaska T, Hagopian M, Cohen D, Paveza GJ: Determination of Need - Revision Final Report, Volume II. Chicago, Illinois: University of Illinois at Chicago, 1989.